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  #181  
Old 7th August 2019, 20:22
Mo34 Mo34 is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
Originally Posted by Melangell
After my ASD diagnosis I volunteered in a specialist school for autism and started to really doubt the diagnosis. I just didn't have any of the behaviours I was seeing the children display, I had been through mainstream school and past all my exams, followed the rules, had friends. I wasn't a 'difficult' child. Also I had had an abusive childhood and had been told I have complex PTSD.

But then I have read a lot recently about masking and girls with ASD and how they present differently to boys, they do tend to be well behaved, to copy other children to fit in, I really related to it and to the exhaustion and confusion I get from social interaction. So I am thinking that probably both are factors, underlying ASD and then childhood trauma, probably made worse by being autistic and lacking the social wherewithal to deal with any problems or to seek help.

I am still not completely sure!!! But am starting to accept the diagnosis more.

Complicated so and so's aren't we
That's the trouble there are so many cross over conditions/disorders that it all becomes confusing! I genuinely have no idea if I have ASD but I do score high enough on self assessment. Like you though I have been told I suffer from trauma (though I've never been given a PTSD diagnosis) so i'm not sure what's really wrong with me, whether it's just sa and avoidance or more than that. I do identify with masking a great deal but it's not a something that is unique to ASD so I end up full of doubt, still at nearly 41 I've got nothing to lose being assessed.

We are indeed far too complicated!
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  #182  
Old 8th August 2019, 14:23
Percy Percy is offline
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Default Re: The Autism, Asperger's and ASD Thread

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Originally Posted by firemonkey
I went to an Atwood conference a couple of years ago. He's very good. Definitely one of the leading experts on the condition.
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  #183  
Old 8th August 2019, 14:37
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

^ I could never get to a conference of any kind without someone accompanying me .
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  #184  
Old 8th August 2019, 16:25
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Default Re: The Autism, Asperger's and ASD Thread

I've been diagnosed with ASD not so long ago. Not really sure what's supposed to happen next, but I did get a letter saying I've been added to a waiting list for 'follow up intervention', it'll be interesting to see what comes of that.
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  #185  
Old 9th August 2019, 13:59
Percy Percy is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
Originally Posted by firemonkey
^ I could never get to a conference of any kind without someone accompanying me .
It wasn't too easy for me too. Particularly since this one woman kept glancing at me.
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  #186  
Old 10th August 2019, 10:26
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

How do people know when to start up a conversation with someone? A relationship with another person depends on initially striking up a conversation with them, but for the life of me I have no idea how a person A sitting opposite person B on a train(using that as an example) would know whether to strike up a conversation with person B . Yet plenty of people seem to know instinctively how and when to do so.
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  #187  
Old 10th August 2019, 10:58
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Default Re: The Autism, Asperger's and ASD Thread

I think literally any time is the best time for that, if both people are the kind who don't mind or even enjoy talking to strangers. People having a positive reaction to it and a pleasant conversation afterwards is more to do with them generally enjoying doing that, rather than it being initiated at exactly the "right time".
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  #188  
Old 19th August 2019, 09:31
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

“Are you neurotypical?” How autistic people compensate to fit in


https://www.nationalelfservice.net/l...ate-to-fit-in/
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  #189  
Old 19th August 2019, 10:05
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

Petition to cancel "Train your baby like a dog"


https://www.change.org/p/channel-4-c..._bandit_var=v1
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  #190  
Old 19th August 2019, 10:33
Jen. Jen. is offline
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Default Re: The Autism, Asperger's and ASD Thread

A better approach would be to actually watch it and then complain to OFCOM, who will take appropriate action if it breaches any rules. A petition the day before it airs won't change anything.
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  #191  
Old 24th August 2019, 14:06
Percy Percy is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
Originally Posted by jen.m.
A better approach would be to actually watch it and then complain to OFCOM, who will take appropriate action if it breaches any rules. A petition the day before it airs won't change anything.
Wise words
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  #192  
Old 25th August 2019, 07:51
affluenza affluenza is offline
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Default Re: The Autism, Asperger's and ASD Thread

Woman with autism, good read
https://www.devonlive.com/news/devon...eoples-3217394
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  #193  
Old 26th August 2019, 16:26
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
The fashion for celebrating ‘neurodiversity’ ignores those with debilitating severe autism, which has created a rift in the community

https://www.theguardian.com/commenti...versity-severe
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  #194  
Old 27th August 2019, 15:29
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

'Green eggs and ham'. I took it literally . Couldn't work out how they got the eggs green !
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  #195  
Old 27th August 2019, 15:44
Dougella Dougella is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
Originally Posted by firemonkey
There's an interesting point at the end of the article there that Asperger's syndrome should be reintroduced as a diagnosis, because it does help to differentiate somewhat between people who fit that category and people who are at the more severe end of the autistic spectrum.
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  #196  
Old 27th August 2019, 15:58
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

I think the whole defining functioning primarily by IQ (In the USA) , and ICD 11 will probably have similar, is highly flawed.

I've been regarded as very intelligent by a good number of psychiatrists , but due to my lack of practical skills , I need quite a lot of help to maintain independent living . There's no developmental delay , but it's very probable I have a learning difficulty. I'm dxed with Asperger's , but in no way am I one of the highly gifted Aspie types.
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  #197  
Old 31st August 2019, 11:55
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

I just finished reading an angry article in The Guardian that suggests the rise in autism diagnoses for bright, verbal people devalues and disregards the experience of nonverbal autistics who display aggressive and self-injurious behaviors and (according to the As an autistic advocate, autism consultant, writer and presenter, I am no stranger to hearing statements reminding me that autism understanding and acceptance are still a long way off. The uninformed masses often characterize those with the “Asperger’s-type” presentation of autism as lazy, arrogant, savant, weird and lacking empathy. On the other hand, autistics that cannot communicate with spoken language or control their bodies are described as dangerous, destructive, uneducable burdens with no redeeming features that live miserable lives.

Long story short, society’s attitude can be summarized like this: if you are considered “low functioning,” we couldn’t care less about your strengths. If you are considered “high functioning,” we couldn’t care less about your needs. This is [what’s wrong with functioning labels](https://themighty.com/2019/08/autism...n=in-text-link)!


https://www.yahoo.com/lifestyle/cont...1&guccounter=2
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  #198  
Old 5th September 2019, 13:53
Tubbs Tubbs is offline
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Default Re: The Autism, Asperger's and ASD Thread

I'm still waiting for my assessment, coming up to 8 months now.

I have a question for people who've been diagnosed. Once you'd had the diagnosis were you offered any support after, or were you then just left to get on with it? I'm hoping there is some kind of support on offer but this might just be wishful thinking of course!

What about charities, any recommendations? I see that there's an Autism Hampshire group near to where I live but what puts me off is I don't know if I can just turn up
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  #199  
Old 5th September 2019, 13:57
Percy Percy is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
Originally Posted by Tubbs
I'm still waiting for my assessment, coming up to 8 months now.

I have a question for people who've been diagnosed. Once you'd had the diagnosis were you offered any support after, or were you then just left to get on with it? I'm hoping there is some kind of support on offer but this might just be wishful thinking of course!

What about charities, any recommendations? I see that there's an Autism Hampshire group near to where I live but what puts me off is I don't know if I can just turn up
I wasn't offered support per say but you have the option of registering with Hampshire Autism who are apparently very good. No one on one support though sadly.
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  #200  
Old 5th September 2019, 14:26
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

I had a post diagnosis appointment where support needs and how best to get them were discussed . I was sent a letter detailing what had been discussed. I got an I.C.E (In case of emergency) card and a form to apply for an autism alert card , which came yesterday.
They are currently trying to get funding for a post diagnosis course
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  #201  
Old 5th September 2019, 15:47
Melangell Melangell is offline
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Default Re: The Autism, Asperger's and ASD Thread

I wasn't offered any support, sadly

Just given a few leaflets
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  #202  
Old Yesterday, 09:17
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

Describing how things are:
Quote:
I have a cleaner who comes in twice a week. My stepdaughter or one of my granddaughters comes to GP appointments etc with me . My stepdaughter takes me shopping and guides me round the aisles . I can use the washing machine , but need help to hang the washing on the clothes horse. My stepdaughter deals with any practical matters that may crop up . I'll bathe and shower most days , but sometimes my stepdaughter will point out that my t shirt or trousers need changing, my hair needs brushing etc.
If I wanted to go anywhere outside of the small area I know someone would have to come with me . I'm not good at taking oral meds(Kemadin and Omeprazole). My stepdaughter arranged for them to be put in weekly dosette boxes , even so I still forget to take them sometimes(though less frequently than before) .
Response on the wrong planet ASD forum :
Quote:
You look like you could be at or nearing the age when NTs would need the same level of support as you do.

I wonder if this is par for the course when it comes to being late middle aged and on the spectrum . Your difficulties reduced to a NT your age needing that support anyway.
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  #203  
Old Yesterday, 13:17
Dougella Dougella is offline
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Default Re: The Autism, Asperger's and ASD Thread

^ Did you find that slightly rude, how old are they suggesting you are?! My parents are older than you and neither needs any practical support with things like cleaning, shopping or taking medications. Having said that I suppose it depends on a person's state of health.
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  #204  
Old Yesterday, 14:41
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

I guess they're thinking I'm 65-70+ . I know I'm not the most photogenic person in the world but WTF.

My father turned 89 in June. He does quite a bit better than I do when It comes to day to day,practical stuff.
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  #205  
Old Yesterday, 14:55
Dougella Dougella is offline
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Default Re: The Autism, Asperger's and ASD Thread

No, you don't look that old!

I definitely think there is a difference between the type of assistance that an autistic person might need (and should be entitled to) and the type of assistance that elderly people sometimes need. As you say there are plenty of people who need no help at all in old age, and maybe if your father is 89 and still going strong you will stay physically well for that long too.
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  #206  
Old Yesterday, 20:25
mutedsoul mutedsoul is offline
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Default Re: The Autism, Asperger's and ASD Thread

Do you ever get afraid of people discovering that you are socially awkward if you are?
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  #207  
Old Yesterday, 20:39
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

Getting afraid of people discovering I'm socially awkward is pointless. It's so obvious that I am.
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