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  #181  
Old 10th August 2019, 11:26
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

How do people know when to start up a conversation with someone? A relationship with another person depends on initially striking up a conversation with them, but for the life of me I have no idea how a person A sitting opposite person B on a train(using that as an example) would know whether to strike up a conversation with person B . Yet plenty of people seem to know instinctively how and when to do so.
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  #182  
Old 10th August 2019, 11:58
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Default Re: The Autism, Asperger's and ASD Thread

I think literally any time is the best time for that, if both people are the kind who don't mind or even enjoy talking to strangers. People having a positive reaction to it and a pleasant conversation afterwards is more to do with them generally enjoying doing that, rather than it being initiated at exactly the "right time".
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  #183  
Old 19th August 2019, 10:31
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

“Are you neurotypical?” How autistic people compensate to fit in


https://www.nationalelfservice.net/l...ate-to-fit-in/
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  #184  
Old 19th August 2019, 11:05
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

Petition to cancel "Train your baby like a dog"


https://www.change.org/p/channel-4-c..._bandit_var=v1
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  #185  
Old 19th August 2019, 11:33
Jen. Jen. is offline
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Default Re: The Autism, Asperger's and ASD Thread

A better approach would be to actually watch it and then complain to OFCOM, who will take appropriate action if it breaches any rules. A petition the day before it airs won't change anything.
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  #186  
Old 24th August 2019, 15:06
Percy Percy is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
Originally Posted by jen.m.
A better approach would be to actually watch it and then complain to OFCOM, who will take appropriate action if it breaches any rules. A petition the day before it airs won't change anything.
Wise words
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  #187  
Old 25th August 2019, 08:51
affluenza affluenza is offline
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Default Re: The Autism, Asperger's and ASD Thread

Woman with autism, good read
https://www.devonlive.com/news/devon...eoples-3217394
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  #188  
Old 26th August 2019, 17:26
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
The fashion for celebrating ‘neurodiversity’ ignores those with debilitating severe autism, which has created a rift in the community

https://www.theguardian.com/commenti...versity-severe
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  #189  
Old 27th August 2019, 16:29
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

'Green eggs and ham'. I took it literally . Couldn't work out how they got the eggs green !
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  #190  
Old 27th August 2019, 16:44
Dougella Dougella is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
Originally Posted by firemonkey
There's an interesting point at the end of the article there that Asperger's syndrome should be reintroduced as a diagnosis, because it does help to differentiate somewhat between people who fit that category and people who are at the more severe end of the autistic spectrum.
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  #191  
Old 27th August 2019, 16:58
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

I think the whole defining functioning primarily by IQ (In the USA) , and ICD 11 will probably have similar, is highly flawed.

I've been regarded as very intelligent by a good number of psychiatrists , but due to my lack of practical skills , I need quite a lot of help to maintain independent living . There's no developmental delay , but it's very probable I have a learning difficulty. I'm dxed with Asperger's , but in no way am I one of the highly gifted Aspie types.
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  #192  
Old 31st August 2019, 12:55
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

I just finished reading an angry article in The Guardian that suggests the rise in autism diagnoses for bright, verbal people devalues and disregards the experience of nonverbal autistics who display aggressive and self-injurious behaviors and (according to the As an autistic advocate, autism consultant, writer and presenter, I am no stranger to hearing statements reminding me that autism understanding and acceptance are still a long way off. The uninformed masses often characterize those with the “Asperger’s-type” presentation of autism as lazy, arrogant, savant, weird and lacking empathy. On the other hand, autistics that cannot communicate with spoken language or control their bodies are described as dangerous, destructive, uneducable burdens with no redeeming features that live miserable lives.

Long story short, society’s attitude can be summarized like this: if you are considered “low functioning,” we couldn’t care less about your strengths. If you are considered “high functioning,” we couldn’t care less about your needs. This is [what’s wrong with functioning labels](https://themighty.com/2019/08/autism...n=in-text-link)!


https://www.yahoo.com/lifestyle/cont...1&guccounter=2
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  #193  
Old 5th September 2019, 14:53
Tubbs Tubbs is offline
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Default Re: The Autism, Asperger's and ASD Thread

I'm still waiting for my assessment, coming up to 8 months now.

I have a question for people who've been diagnosed. Once you'd had the diagnosis were you offered any support after, or were you then just left to get on with it? I'm hoping there is some kind of support on offer but this might just be wishful thinking of course!

What about charities, any recommendations? I see that there's an Autism Hampshire group near to where I live but what puts me off is I don't know if I can just turn up
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  #194  
Old 5th September 2019, 14:57
Percy Percy is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
Originally Posted by Tubbs
I'm still waiting for my assessment, coming up to 8 months now.

I have a question for people who've been diagnosed. Once you'd had the diagnosis were you offered any support after, or were you then just left to get on with it? I'm hoping there is some kind of support on offer but this might just be wishful thinking of course!

What about charities, any recommendations? I see that there's an Autism Hampshire group near to where I live but what puts me off is I don't know if I can just turn up
I wasn't offered support per say but you have the option of registering with Hampshire Autism who are apparently very good. No one on one support though sadly.
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  #195  
Old 5th September 2019, 15:26
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

I had a post diagnosis appointment where support needs and how best to get them were discussed . I was sent a letter detailing what had been discussed. I got an I.C.E (In case of emergency) card and a form to apply for an autism alert card , which came yesterday.
They are currently trying to get funding for a post diagnosis course
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  #196  
Old 17th September 2019, 10:17
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

Describing how things are:
Quote:
I have a cleaner who comes in twice a week. My stepdaughter or one of my granddaughters comes to GP appointments etc with me . My stepdaughter takes me shopping and guides me round the aisles . I can use the washing machine , but need help to hang the washing on the clothes horse. My stepdaughter deals with any practical matters that may crop up . I'll bathe and shower most days , but sometimes my stepdaughter will point out that my t shirt or trousers need changing, my hair needs brushing etc.
If I wanted to go anywhere outside of the small area I know someone would have to come with me . I'm not good at taking oral meds(Kemadin and Omeprazole). My stepdaughter arranged for them to be put in weekly dosette boxes , even so I still forget to take them sometimes(though less frequently than before) .
Response on the wrong planet ASD forum :
Quote:
You look like you could be at or nearing the age when NTs would need the same level of support as you do.

I wonder if this is par for the course when it comes to being late middle aged and on the spectrum . Your difficulties reduced to a NT your age needing that support anyway.
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  #197  
Old 17th September 2019, 14:17
Dougella Dougella is offline
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Default Re: The Autism, Asperger's and ASD Thread

^ Did you find that slightly rude, how old are they suggesting you are?! My parents are older than you and neither needs any practical support with things like cleaning, shopping or taking medications. Having said that I suppose it depends on a person's state of health.
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  #198  
Old 17th September 2019, 15:41
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

I guess they're thinking I'm 65-70+ . I know I'm not the most photogenic person in the world but WTF.

My father turned 89 in June. He does quite a bit better than I do when It comes to day to day,practical stuff.
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  #199  
Old 17th September 2019, 15:55
Dougella Dougella is offline
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Default Re: The Autism, Asperger's and ASD Thread

No, you don't look that old!

I definitely think there is a difference between the type of assistance that an autistic person might need (and should be entitled to) and the type of assistance that elderly people sometimes need. As you say there are plenty of people who need no help at all in old age, and maybe if your father is 89 and still going strong you will stay physically well for that long too.
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  #200  
Old 17th September 2019, 21:25
mutedsoul mutedsoul is online now
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Default Re: The Autism, Asperger's and ASD Thread

Do you ever get afraid of people discovering that you are socially awkward if you are?
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  #201  
Old 17th September 2019, 21:39
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

Getting afraid of people discovering I'm socially awkward is pointless. It's so obvious that I am.
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  #202  
Old 19th September 2019, 23:34
mutedsoul mutedsoul is online now
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Default Re: The Autism, Asperger's and ASD Thread

I think it's so easy to say how can you expect people to live you of your don't live yourself and similar things of you haven't had long term difficulties fitting in or finding acceptance. It's not easy to accept yourself if you have been told being yourself is wrong all your life.

Today I feel I was opening up to a colleague. I was just sharing another fact with him when he said "You watch a lot of documentaries." He must have been stressed.

I don't need to take it badly but I did. He reminded me how one dimensional my convos with him must have been. Didn't feel like speaking to him as much after and thought that I must be around the wrong people for me.

But then the alternative is to be silent, which I am most of the time.

I am so afraid of being socially awkward, but I am socially awkward.

I know rationally that the way I feel, things I do are bad or even won't however even I think I am weird. I feel I take stuff that I shouldn't care about our that others wouldn't seriously. And the same the other way round, for example I don't care for small talk bit it seems important to most other people.
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  #203  
Old 20th September 2019, 04:04
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

Autism umbrella chart

Quote:
Autism is an ‘Umbrella term’ used to describe a combination of characteristics (listed in the chart below). Autistic
people often have ‘spikey profiles’, so they might experience mild difficulties in some areas, but severe difficulties in all
of the others. This is why autism cannot accurately be described as being ‘mild, moderate or severe’ and it’s likely that
a unique autistic profile will include a combination of mild, moderate and severe difficulties.
https://www.chatterpack.net/
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  #204  
Old 23rd September 2019, 19:07
Tubbs Tubbs is offline
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Default Re: The Autism, Asperger's and ASD Thread

I will try and make it to my local Autism group this week. I'm hoping that writing this down will increase the likelihood of it happening.
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  #205  
Old 27th September 2019, 09:09
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

I'm prone to catastrophising. Until today I had never thought of it in relation to autism.
A post on another forum mentioned it as being an 'autism characteristic' .


https://network.autism.org.uk/knowle...atastrophising
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  #206  
Old 27th September 2019, 09:42
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
When Tim was 11-years-old he created his own superhero. Laser Beak Man now appears in colourful artworks showing Tim’s unique sense of humour connected to his literal understanding of language. And when Oakley was 5-years-old he drew a pirate, inspiring his mother to write a kids’ book to raise understanding about autism and difference.
https://www.abc.net.au/radionational...eroes/11546168
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  #207  
Old 27th September 2019, 12:57
Percy Percy is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
Originally Posted by Tubbs
I will try and make it to my local Autism group this week. I'm hoping that writing this down will increase the likelihood of it happening.
Good luck Tubbs
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  #208  
Old 1st October 2019, 19:56
Jane Doe Jane Doe is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
Originally Posted by Tubbs
I'm still waiting for my assessment, coming up to 8 months now.

I have a question for people who've been diagnosed. Once you'd had the diagnosis were you offered any support after, or were you then just left to get on with it? I'm hoping there is some kind of support on offer but this might just be wishful thinking of course!

What about charities, any recommendations? I see that there's an Autism Hampshire group near to where I live but what puts me off is I don't know if I can just turn up
I was diagnosed five years ago and had the opportunity to attend an Autism group but it was in another town too far away, and as I can't use public transport I was unable to go. My mums friend is always chatting to people and apparently there is an Autism group at a community centre near where I live but I'm too anxious to go.
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  #209  
Old 4th October 2019, 00:49
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

Just done an aphantasia study via the Imagery lab at Sussex university . One of the questions asked at the end was whether one had Asperger's or autism.

I am not sure whether the link provided was exclusively for me or not. So I will not post it .

If you're interested . Contact Carla Dance.

If you have any questions about the research, please email Carla Dance (c.dance@sussex.ac.uk). We are very grateful for all participation in our research and hope that our work will further the understanding and knowledge about aphantasia.
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  #210  
Old 7th October 2019, 14:03
Tubbs Tubbs is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
Originally Posted by Percy
Good luck Tubbs
Cheers Percy

Quote:
Originally Posted by Jane Doe
I was diagnosed five years ago and had the opportunity to attend an Autism group but it was in another town too far away, and as I can't use public transport I was unable to go. My mums friend is always chatting to people and apparently there is an Autism group at a community centre near where I live but I'm too anxious to go.
I'm in the same boat. It's not so much the group I'm scared of (though that scares me too!), but getting there by myself using public transport.
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