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  #121  
Old 20th May 2019, 16:42
Dougella Dougella is offline
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Default Re: The Autism, Asperger's and ASD Thread

^^ I'm not sure if congratulations is the right word to use, but I'm glad you got some answers from your assessment I hope that the diagnosis will be some help for you to get support in the future, or just for you to understand yourself better.
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  #122  
Old 28th May 2019, 14:45
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

https://www.spectrumnews.org/opinion...rious-concern/

I was the opposite with signs of severe mental illness since I was 18 ,with it not being established I was on the spectrum till I was 62. Either way there needs to be a more intelligent approach to the issue.
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  #123  
Old 30th May 2019, 21:28
Kooky Monster Kooky Monster is offline
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Default Re: The Autism, Asperger's and ASD Thread

I've been starting to wonder recently if this could apply to me, so I ran the idea past the lady I see at the mental health charity I attend (she's a former nurse and not a MH worker), and while after reading up on it she agreed that I could fit the critera, the main question she asked me was 'what difference would it make now, at this stage in life, if you were to receive a diagnosis?' and I was a bit stumped as to how to answer it.

So to those of you who have been dianosed later in life, or are looking for a diagnosis - what difference did/do you think receiving one made/would make to you?
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  #124  
Old 30th May 2019, 21:46
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

For me it was about fitting together the pieces to a puzzle, and validating what I'd known for years(ie that there was more going on than severe mental illness) . At 62 , and with the scant help and support for adults on the spectrum , I'm not expecting any earth shattering difference.

It will however strengthen the need to maintain the current level of social care I get .
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  #125  
Old 1st June 2019, 15:43
Kooky Monster Kooky Monster is offline
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Default Re: The Autism, Asperger's and ASD Thread

Thanks for your reply, firemonkey
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  #126  
Old 1st June 2019, 15:51
Melangell Melangell is offline
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Default Re: The Autism, Asperger's and ASD Thread

As yet it hasnít helped me, but partly thatís because I ignore it and on some level have found the diagnosis very hard to accept

I would like for it to have been more positive, but without any ongoing support or knowing anyone similar, it just makes me feel like I am broken
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  #127  
Old 4th June 2019, 18:15
In_infamy In_infamy is offline
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Default Re: The Autism, Asperger's and ASD Thread

I've just found out the waiting list for a first appointment is 12 - 18 months. Extremely unhelpful. How long did other people have to wait?
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  #128  
Old 4th June 2019, 19:24
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

From referral letter to confirmation of diagnosis was just under 7 months for me .
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  #129  
Old 5th June 2019, 20:04
Mr. Nobody Mr. Nobody is offline
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Default Re: The Autism, Asperger's and ASD Thread

Anyone feel that being on the autism spectrum has robbed you of your humanity?

Dealing with, or relating with, people seems like living in a foreign country where you don't know the language and you've resorted to filing behaviour, etiquette and social interaction under a kind of binary code system or a database.
She has done this, therefore I should ask that,
He has said this, so now I must respond with that,
The whole thing becomes a guessing game of trying to find the correct responses that should work in the situation,
But it's all so remote and feels like I'm in the dark, desperately trying not to do wrong, but invariably getting it wrong and appearing insincere
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  #130  
Old 6th June 2019, 08:00
Melangell Melangell is offline
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Default Re: The Autism, Asperger's and ASD Thread

Yes

It doesnít matter if I mix with people or avoid them.
I am always lonely
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  #131  
Old 6th June 2019, 10:22
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

I make little attempt of my own bat to interact with people. From as far back as I can remember I've been the same. If I have to socialise I'll be as polite/sociable as I can, there's no intent to deliberately upset anyone, but as my stepdaughter said I do things that people might see as inappropriate and talk across people(whatever that means).

Every now and then I'll make an attempt to socialise . Last time was several months ago . I went to a mental health group at my local library. I didn't initiate any conversation, but offered the occasional response to other people's comments. It fell on deaf ears . I felt like an outsider. The situation was made worse when I gave some money for the coffee and tea fund , and the person running the group made a sarky comment about my having my money on a piece of string. Needless to say I never went back.

That's been par for the course with other attempts to socialise, ie a total failure to integrate.
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  #132  
Old 11th June 2019, 01:08
mutedsoul mutedsoul is offline
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Default Re: The Autism, Asperger's and ASD Thread



This video actually relaxed me a bit. I think it was the fact that the guy seemed accepting of the fact that he had aspergers.

My temp job has finished since they found someone permanent, though he is on a trial. I actually asked to be permanent but then changed my mind as the environment was depressing for me.

It feels refreshing being unemployed, it's like I have more energy and freedom to do what I want. But it's also scary and shameful. Like I can't even hold down as minimum wage job. Maybe it's immature of me to not take responsibility and work.

Tbh though, I think ideally what I need is to actually go to the doctors to sort out my depression, anxiety and also get a diagnosis. May actually be another neurological disorder to autism. I think a neurological disorders is the root of my anxiety which causes me depression. I need help more than employment.

I do want a job but for a job to be sustainable it needs to be in an environment where at least I feel supported or treated like an equal. I actually don't feel it would be a bad idea to go on benefits now, though I wouldn't want to, cause I imagine doing another job the same old, depressing situation repeating itself. No friends, being misunderstood having some people even give you dirty look, silent treatment etc.

Probably mainly need support or top be more comfortable with myself. I just realised how I don't feel that I have anyone in real life that I can talk about my issues to. Maybe my one WhatsApp friend. But my mum has her own mental illness and is also socially awkward.
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  #133  
Old 11th June 2019, 01:43
mutedsoul mutedsoul is offline
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Default Re: The Autism, Asperger's and ASD Thread

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  #134  
Old 11th June 2019, 06:14
Jane Doe Jane Doe is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
Originally Posted by Mr. Nobody
Anyone feel that being on the autism spectrum has robbed you of your humanity?
I'm not sure I'd put it that way but I understand what you mean. I think that being on the autism spectrum can make other people (neuro typicals) behave less humanely towards us. This gives us a distorted perception of ourselves as "other" and therefore, less authentically human. That's not true of course, our brains are just wired differently.

I consider myself to be quite astute; I definitely understand neuro typicals more than they understand me, which should put me in an advantageous position socially however, because it takes me longer to process information and adapt to social situations, my mind is taken up with too many other things. I then struggle to know what to say to people.

Throughout my life I've noticed that people have tried to control my thoughts and opinions by asking me too many leading questions. They'll also try to prompt me or fill in conversational gaps because they need recognition and reassurance. People have done this a lot and will often say "I bet you felt like this when that happened" or " You must have been relieved when they said that". I quickly learned to just say "Yes" or "Mmm" to shut them up. I know that's because I'm not forthcoming with my feelings and can often appear 'flat' which really annoys people who don't know me. Pointing out the obvious and small talk is something else I don't understand. People just seem to talk for the sake of talking.
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  #135  
Old 11th June 2019, 10:45
mutedsoul mutedsoul is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
Originally Posted by Mr. Nobody
Anyone feel that being on the autism spectrum has robbed you of your humanity?
No, but it has made me angry and feel very mistreated. Although I also think this isn't aspergers itself but how I have not felt comfortable with myself. Societies poor understanding of neurological differences and also my mum's lack of understanding or acceptance of neurological differences despite being mentally ill herself.

It sometimes feels like I am made to feel like a bad person despite not being bad and that make me angry. It makes me feel like it is important that there is more autism/neurological awareness and just like homophobia isn't acceptable, bullying a person for being different or hard to understand is not acceptable. It's understandable, but then society should be more aware that just cause someone doesn't operate typically doesn't make them less of a person, it doesn't mean that they can't feel or think just like a typical person does.
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  #136  
Old 11th June 2019, 11:36
mutedsoul mutedsoul is offline
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Default Re: The Autism, Asperger's and ASD Thread

The costs of camouflaging autism
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  #137  
Old 11th June 2019, 13:16
Melangell Melangell is offline
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Default Re: The Autism, Asperger's and ASD Thread

So interesting, thank you for sharing the article
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  #138  
Old 11th June 2019, 16:44
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

It's been said there may be a link between aphantasia and ASD. This questionnaire asks questions re aphantasia and some re ASD .

It's via the university of Sussex. It takes about 30 min to do. I have aphantasia and Asperger's syndrome.

https://www.syntoolkit.org/studies/p...BO1TGKtFnPCCW0
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  #139  
Old 12th June 2019, 20:22
Mr. Nobody Mr. Nobody is offline
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Default Re: The Autism, Asperger's and ASD Thread

^^^
Interesting article there mutedsoul,
I do wonder about the unforseen results of masking or forcing yourself to stop certain things,
I often used to physically rock back and forth and often repeated the same word over and over,
But forcing those things to end creates a certain discomfort and uneasiness,
Those acts have now become an inner thing,
I'm always repeating things over and over endlessly in my head,
I'm also often keeping a repetitive beat in my head by grinding and clicking my teeth together,

I have wondered if the trade-off for 'normality has been worth it?
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  #140  
Old 12th June 2019, 20:57
limey123 limey123 is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
Originally Posted by Mr. Nobody
^^^
I'm also often keeping a repetitive beat in my head by grinding and clicking my teeth together,

I do the teeth-clicking thing too. Not sure why.
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  #141  
Old 12th June 2019, 21:22
biscuits biscuits is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
Originally Posted by mutedsoul
thanks for sharing this, mutedsoul

I really need to talk to someone about this, but I don't really know who.
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  #142  
Old 13th June 2019, 00:14
Percy Percy is online now
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
Originally Posted by biscuits
thanks for sharing this, mutedsoul

I really need to talk to someone about this, but I don't really know who.
Yes, talk to someone about this Biscuits, absolutely do. My life could have been so much better if i'd been diagnosed sooner or had someone who listened and had recognized the symptoms. Even if it turns out you aren't on the spectrum at least you'll have that reassurance.

https://www.autism.org.uk/

Hopefully they'll be able to point you in the right direction. Run it by your local GP as well, they might be amenable to having you tested, depending on the attitudes of the GP. Failing that many local based charities are excellent for local area autism support and diagnosis.
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  #143  
Old 13th June 2019, 10:28
firemonkey firemonkey is offline
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Default Re: The Autism, Asperger's and ASD Thread

Quote:
Children with autism spectrum disorder (ASD) are more likely to experience bullying than children without ASD and this bullying gets worse with age, according to new research from Binghamton University, State University of New York.

https://www.sciencedaily.com/release...0612110129.htm

That would explain my situation . I was teased at prep school , but the real, nasty, verbal bullying started when I went to public school at 13. There were undoubtedly back then signs of what we now call either ASD or Asperger's .
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  #144  
Old 13th June 2019, 18:43
mutedsoul mutedsoul is offline
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Default Re: The Autism, Asperger's and ASD Thread

Went to the GP's to ask for an assesment. I think the GP did his work on the computer before I came as I saw him about a year ago or something asking for the same assesment.

I actually didn't say all I wanted to due to anxiety popping up and shame of having to ask the GP as, although I know autism is a serious thing, it felt very minor like I shouldn't take it serious.

However through the Autism society website I found a specailist in Central London that specialises in assessing autism and other neurological disorders. Apparently can self refer as well so I have also emailed her clinic.

I also recently feel a bit less guilty if it seems like a person has an issue with me cause I know I am not a bad person.
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  #145  
Old 14th June 2019, 22:44
mutedsoul mutedsoul is offline
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Default Re: The Autism, Asperger's and ASD Thread

I found that the private assessment is £850 minimum so don't have the money for that currently.

The GP have me a copy of me getting assessed but the letter is from last year so it almost feels like me getting assessed is not being taken seriously. I know it's normal to wait for long but why should it be?
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