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25th February 2021, 02:21
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Re: How is everyone feeling? (31)
^ I hope it doesn't take too long for your test results to come back so that you can get some peace of mind
 A whirlwind of emotions and feelings... I had to urgently see a Dentist this morning after developing painful toothache. I hate going to the Dentists at the best of times but when there's the worry of catching the virus it's even worse. The pain is probably due to an infection so I've started on a course of antibiotics. I hope they work soon as it's keeping me awake and I really hope I haven't caught Covid. After just a week on chemo my mum is feeling and looking far worse than before. I know it's due to the side effects but it's so difficult to see a loved one suffering. It's taking me back to 30 years ago when I lost my dad. Cancer sucks big time. My mind is also, yet again, full of newly discovered details about my birth family. I'm now in touch with a half brother. Despite his horrific childhood he comes across very sociable and confident. He has also inherited exotic Egyptian genes from his father. Trust me to draw the short end of the straw when it comes to my DNA. No matter what, I always compare and then feel so inadequate. 
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25th February 2021, 17:28
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Re: How is everyone feeling? (31)
@Consolida: sorry your mum is suffering, hopefully things will very soon get better for her. My mother also looked worse on chemo, but in the long run it kept her alive. Hang in there!
Just had COVID jab. It was the weediest jab of any kind I've ever had, I wasn't even sure she'd actually inserted the needle. V. slick organisation - I was in and out in a few minutes - not bad at all!! Now waiting to see if any strange side-effects... Struggling with my new job (and the nightshift too). Now having to finally face up to the fact that I will need some accomodations in order to do most kinds of jobs (thanks, Asperger's).
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27th February 2021, 11:34
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Re: How is everyone feeling? (31)
General health rant
had my CT scan 12 days ago - still heard nothing, wasn't any sort of evidence it ever happened at my doctors on wednesday. had my blood tests on wednesday - she said she would let me know on friday. bugger all. Now do I adopt the no news is good news approach or do I assume my local doctors/hospital are ran by the PG tips monkeys I've felt shit since November but I guess a positive is I feel just as shit now as I did then 
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27th February 2021, 12:27
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Re: How is everyone feeling? (31)
I feel disgusting. It’s the time of year when I’m dry from the cold, all my scalp is flakey and my skin is itchy and if I use anything to add moisture I get greasy hair and blocked pores. The sun is too bright and I get headaches from it and I start to get some of those early spring sinus problems. Nothing about me works.
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27th February 2021, 16:06
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Re: How is everyone feeling? (31)
^ oh wow
I may be waiting a while then! Well my doctors took my bloods for an entirely different reason so they dont even know what the deal is with the CT scan - I can see how I will be spending my monday I foolishy thought it would only be a couple of days - no one told me expect several weeks!
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28th February 2021, 16:24
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Re: How is everyone feeling? (31)
I've had 3 text messages today from the doctors saying your test result is normal no further action required.
I presume thats my bloods (I see what they are doing - send on a monday so you can't ring them up!) I don't know why 3 if I had a..full blood count? surely it would be ..1..or a lot more than 3?  It'd be nice to trick myself into thinking one of them was my CT scan but I think I know thats unlikely! I'm a little miffed as I've got some really irritating discomfort in my neck/throat/jaw and part of me had banked on it being an infection - which could have explained my heart too....but no ^ I hope you get some useful answers from your GP about your son
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1st March 2021, 11:11
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Re: How is everyone feeling? (31)
^ It's good that your test results have come back normal but I know, from my own experience, how frustrating that can be when you're suffering with unpleasant symptoms that you haven't found an explanation for. Don't let the Doctors fob you off too easily.
@ Nanuq, I really hope that your son hasn't got Pots although from what you say it does sound like it matches up with the symptoms other people have with the condition. Never rains but it pours aye! The human body really does have a lot of design flaws  Feeling very stressed. After only a week my mum is feeling exceptionally ill on the chemotherapy. We called 101 who were quite helpful once they'd gone through a million routine questions concerning Covid. Then we waited 1 hour, then 2 hours for an out of hours Doctor NOT to call. Really, what is the point of a life extending drug if it makes you feel absolutely terrible? 
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1st March 2021, 12:31
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Re: How is everyone feeling? (31)
^ So sorry to hear your mum is suffering so much with the chemo. It's pretty amazing to me that we don't have alternatives to that by now, it's so hard going for a lot of people. Does she have a treatment team at the hospital, can you contact anyone there?
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3rd March 2021, 23:40
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Re: How is everyone feeling? (31)
^ Thanks Dougella x
Over the last few days my mum has continued to go down hill on the Chemotherapy and this evening the Cancer Nurse advised me to call an Ambulance. Thanks to Covid I couldn't accompany her to the Hospital so it was heartbreaking having to say goodbye. She's currently having lots of tests and scans but I am hoping that she is 'only' suffering with an infection due to her compromised immune system and that some powerful antibiotics can very quickly put this right. Anything else doesn't bare thinking about. Any age sucks but old age especially sucks
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4th March 2021, 01:35
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Re: How is everyone feeling? (31)
Feeling so frigging scared
The Doctor just phoned from the Hospital to say my mum has acute Kidney injury (not helped by being dyhdrayed) and Pneumonia. He then started asking if we had ever talked about resuscitation, which we hadn't. I can't help thinking that if she hadn't started the Chemo 2 weeks ago she woukd still be feeling okay at the moment. I'm so so so scared that she won't be coming home. I just want my mum back. I can't cope with all this now
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4th March 2021, 14:04
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Re: How is everyone feeling? (31)
Thank you Percy, Indigo, and Nanuq xxx
Every time the phone rings I fear the worst but pray (I'm not even religious!) for a miracle. The Hospital called in the middle of the night to tell us to get there as soon as possible as it was thought she wouldn't last the night. It took my husband and myself 45 minutes of walking around the hospital because no one knew where my mum was located. Then an incredibly kind cleaner, who had recently lost her mum to covid, tried to help us look until a male Nurse reprimanded and humiliated her in-front of us because she wasn't supposed to be wandering around the hospital. It was definitely a form of bullying and very upsetting to see. To the list of everything that was already wrong with my mum they also added a suspected heart attack which I'm certain the chemotherapy has triggered. Nobody told us that Chemo in someone so old and fail could literally kill them Sorry for the rant. I just needed to get my emotions out here 
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4th March 2021, 16:48
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Re: How is everyone feeling? (31)
@Consolida: so sorry to read your mum and you and your family are suffering. "Rant" all you like, we're here for you. Cancer is so bloody awful. But your mum sounds like a fighter, hang in there!
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5th March 2021, 01:37
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Re: How is everyone feeling? (31)
Thank you so much everyone for your kind comments xx
My mum is still in hospital but hanging in there and at the moment it's a case of no news is good news. It totally sucks that we can't visit her unless it's considered to be an end of life visit but that's Covid for you
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5th March 2021, 14:38
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Re: How is everyone feeling? (31)
Quote:
I agree that it's time that people should be allowed to make up their own minds when it comes to seeing the important people in their lives. Most of the elderly and vulnerable have received their vaccines so it does seem cruel to continue to only allow hospital visits when a loved one is literally on their death bed.
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5th March 2021, 17:35
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Re: How is everyone feeling? (31)
Sorry to hear this Consolida. It sounds very traumatic what you are going through. Not just your poor mum being ill, but also the stress of not being able to see her, and rushing to the hospital and getting lost while thinking the worst.
Covid restrictions are important, but there should certainly be exceptions for those who are very ill, as well as for people visiting care homes. Hopefully this will change soon!
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6th March 2021, 07:41
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Re: How is everyone feeling? (31)
Thank you Choirgirl, Aleks and twosocks xx
Feeling very upset indeed. The phone went at 6:30am and I thought it was the Hospital calling about my mum. Instead it was a patient on my mum's ward calling on her mobile saying that my mum wants to discharge herself. My mum sounded distressed. She doesn't want to be in the hospital anymore because no one will tell her what is happening. When we phone the nurses can't confirm if she had a heart attack, is being treated for pneumonia or has actually suffered kidney damage. We just keep being told to phone later... It's made all the worse because we can't even visit or take anything in. What a nightmare
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6th March 2021, 11:27
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Re: How is everyone feeling? (31)
^^ How terrible, they should at least be making sure that you and your Mum are aware of what's happening. Your Mum sounds fiesty though, she is obviously determined to come home again
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6th March 2021, 14:48
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Re: How is everyone feeling? (31)
Quote:
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7th March 2021, 11:16
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Re: How is everyone feeling? (31)
Can't recall when I was last on here. Have had no laptop and limited internet access.
Has been a a rubbish month or so. Lockdown, the weather , more unexpected bills than I've had for a long time et etc...Managed to get to see a psychologist (why do you have to fight all the time for these things? *sigh*, they reneged on there promise of a shrink appointment so got this instead). 2 appointments. Went through my childhood - the highlights or lowlights  depending on your perspective - did a sort of timeline for her in between appointments. And discussed some of my current issues. She kept reinforcing - we don't do diagnosis they help no one blah blah blah. At the end of it all she said well....I don't think it's helpful to label all this as Avoidant personality disorder whilst inferring that is exactly what it is. Told me graded exposure will not work on PD's etc etc.. So basically I have PD but no one will admit it. Marvellous stuff. ATS only offer short CBT based interventions. So she has no idea where to go next, but you can bet it will be, if anything, some sort of short CBT based load of BS. She started on about us meeting to do the the old wear your shirt inside out and go into places crap (pointed out had this 10+ years ago and was deeply unimpressed even then). It's always surface BS with the NHS it really does get on my nerves although what really gets on my nerves is their inability to admit to it. I'd be far happier if they were just honest. So who knows what they will come up with, nothing much is my guess. She will be taking it to the next ATS meeting and asking her colleges there input as to what to do. But as I'm not at risk or a risk to anyone else my guess is nothing will be done.
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